Thyroid Surgery Recovery Photos & Progress Reports
My thyroid surgery went well and according to plan.
It began around 9:00 a.m. on a Friday and I was home at about 3:30 p.m. that same day.
My surgeon reported to my mom that he was pleased with how it had gone, and he gave her some take-home instructions.
I was actually in more pain that I had expected (or hoped for!). In the recovery room, they asked me to rate my pain from 1-10 and my answer was 8.
They asked if I wanted something for the pain and I remember thinking in my just-out-of-anesthesia haze "Uh, hello, do you even have to ask?... I said EIGHT!"
Before I left the recovery room the pain was down to 5. I also had a shot of pain medication right before I left the hospital. At home, I had Vicodin every 4 hours for the first 2 days.
Actually getting the pain pills down was a bit tricky because swallowing was a complete bummer -- thanks to the double-whammy of having a tube stuck down my throat during surgery and the fact that it was surgery on the neck itself.
So I crushed up my pills at first, and mixed them in some pudding. But that didn't really work. So I tried cutting up the pills instead. But even in small pieces I was afraid I would choke. Somehow I managed, but it was still scary. Thankfully, that got better each time.
I had to sleep on my back for the first couple of days, and I spent most of the first 2 days of recovery in my recliner with my head propped to either side with a small pillow. It was one of those u-shaped travel pillows that I also used when sitting up (in my recliner), because it was difficult to move my head or hold it up.
On the third night, I was able to sleep on my side, as long as I was careful not to twist my neck. Also that day, I stopped the Vicodin except at night.
At 5 days post-op, I was feeling a lot of pain in my neck above the incision. It was definitely painful to touch my neck, and it hurt to even tilt my head back. It felt like extremely sore muscles.
This was also the day that they told me the biopsy they tested was benign (yeah), and they assured me that the pain I was experiencing was perfectly normal. I was feeling the pain more since I had stopped taking the meds as much.
Removing The Pads Over The Incision
This picture was taken 5 days after my thyroid surgery.
The surgical strips are supposed to come off by themselves 7 to 10 days post-op. It's hard to believe there are no stitches, just that tape.
It was originally covered by a thick gauze pad; they said to take that off the day after surgery.
That wasn't fun...
The day after surgery, my first thought was "I don't want to take off that pad, it's nice protection." Then I realized that I should take it off before the nurse called to check on me later that day -- in case I had any questions for her.
So I was in the bathroom and I wanted to see if the tape would hurt when I tugged it off. I started to gently pull it off. It didn't hurt, so I continued. I could see the first part of the incision, and it didn't look too bad, so I continued. Got to the other end, and it had bled a little and stuck to the pad. I pulled it off carefully, and since it didn't hurt I continued and got the pad all the way off.
Immediately, I felt a "whoosh" which must have been all the blood leaving my head, because I was sure I was going to pass out. I took 2 steps to the bathroom door and realized "yep, I'm really going to pass out" so I leaned against the door for I don't know how long. I must have nodded out for a few seconds, because when I "came to" my hands were shaking and I couldn't remember why I was there. Then my legs went out and I went down, knocking my eyeball into the door handle. (I should have a black eye but thankfully do not!)
So now I'm on the floor, and I managed to get the door open. I crawled to the end of the hallway where my mom (who was visiting to help during the first days after surgery) checks me over to make sure I didn't break open the incision (I didn't) or do something obvious to my eye (again, no). Then she says, "They told me I was supposed to help you take that off." Well, no one told me that!
So that was an interesting, but brief, post-surgery freak out.
About Those Sticky Pads...
And now for a post-surgery pet peeve of mine.
At home, I discovered 2 of the little pads they put on you (to hook you up to the monitors and stuff). You know, the kind with the little metal node on it?
Well, those and the big bandage I took off my neck left that sticky tape residue. It's impossible to get off, and those sticky spots got gunky and dirty. I spent a lot of time peeling the stickiness off my body in the days after surgery. I wanted to use my GooGone, but I couldn't peel it off my neck because it would hurt!
So when I did talk to a nurse, they said "No, it won't come off with soap and water. You'll have to use rubbing alcohol." Also, the same is true for removing the yellow betadine from your skin. Now why couldn't they have told me that ahead of time? And wouldn't it be nice if they could send a small bit of it home with you?
That's one of the little things that could make the post-surgery process a bit better, if you ask me.
How Many Days Off Work?
They told me I could go back to work basically as soon as I could drive, but that I should plan on a week or so.
My initial plan was to go back at 5 days post-op, and I could have if I had to, but I really wasn't ready.
I felt I could drive if I had to, but I would've been worried about turning my neck. Not to mention the fact that it would have been really uncomfortable all day at work. So I took a full week off work and will be back on the 10th day after surgery.
In addition to being tired, I think I will have to watch how much talking I do. A phone call of more than 30 minutes causes my throat to throb.
Today is one week after surgery and the pain is much better. I still don't have complete mobility of my head in all directions, but I felt good enough to drive today. Still have pain in my neck (to move or to touch).
UPDATE: 17 Days Post-Op
Returning to work after 10 days seemed completely probable - turns out it was too soon. I had no idea how much you move your head and neck when other people are around you -- vs me at home by myself not looking at anything!
After 2 days at work (Monday and Tuesday) my neck and shoulder muscles were all tensed up and sore. I spoke to my doctor's nurse who agreed taking the rest of the week off would be a good idea, also leaving me another weekend.
So I went back for real today -- Day 17. I can tell a huge difference from last Monday and feel much better today.
The surgical strips finally came off on Day 15, with a little help from me. They were barely holding on at that point. The scar itself looks pretty good, and felt much better after a gentle washing in the shower and cleaning up with the rubbing alcohol.
My doctor saw it today and said it is healing perfectly. I do feel a "thickness" surrounding the actual line of incision. I'm not sure what it is exactly, but the doctor said it should go away in about another month. I'll keep ya posted!
UPDATE: 1 Month Post-Op
Ok, so things are healing nicely. I decided I should include a picture of my whole face, since all along you've only seen my neck! Please remember it's weird to take a picture of yourself, and my hair's doing a dippity don't.
I think my scar is healing very well, and so does my doctor. He says everything is good and normal.
Above and below my scar are "ridges." I can only describe it as "thick". It has decreased drastically, and I can definitely tell it's going to be gone soon. I can feel the thickness inside too, and the doctor says it's just the internal healing.
I am surprised at how tender the scar area still is.
I have been using (my doctor-recommended) Mederma - Skin Care for Scars Soothing Gel. And it really does! It feels and looks like Neosporen, but it dries a little thicker -- almost like it's creating a waterproof shield or something. And it's difficult to get it off. Regular washing doesn't do it; I basically just wait for it to flake off.
I rub it in 2-3 times a day, per the instructions. Once I wanted to get all the old stuff off so I rubbed it vigorously... MISTAKE! Do not do this! Man, did it hurt.
As for everyday pain, the scar is still tender -- both to the touch and just when I move my head. Parts of the scar do not hurt at all, and a couple of parts do. It's all quite bearable, but more tenderness than I was expecting for a month out. But since I've definitely seen everything continue to improve, I'm not worried. I can move my neck as far as I could before -- in all directions -- but I need to do it slowly. A quick jerk or flinch is not good. So just imagine how much I love sneezing! Or the time my sister's parrot flew at me -- ya gotta duck!
The other part I wasn't expecting is what my doctor calls "voice fatigue". My voice sounds normal to others, and mostly to me too, but it feels on the verge of hoarse all the time. And after a regular day in the office (I work in customer service at a university - talking all day) my throat feels sore. I'm not sure how loud or strong it would feel if I had to yell or shout. So some days I come home, turn OFF the phone and put ON the ice pack.
I also need to carry a stick of sunscreen around. I can already feel the sun burning on my scar through my car window -- and I'm an outdoor girl. So this should be lots of fun.
Well, thanks for reading my little thyroid story. I'll come back periodically with scar photos.
Check out the Thyroid Cancer Blog from a thyroid cancer survivor!
Here's a photo of my neck at 3 months post-op:
Hi! I'm glad I found this site. I learned that I had 9 thyroid nodules in 2004 after having been misdiagnosed with vocal fold nodules. I had an ultrasound in 2004 which confirmed thyroid nodules. The doctor said we would just watch them. In 2007 another ultrasound showed growth, so I had a biopsy (which, thankfully, was benign). Again, we just watched. Over the last 2 years my voice has become increasingly hoarse and now I always have the sensation of having a dull sore throat. An ultrasound in September showed they have grown more, the largest being on the right side and measuring 4.4 cm. This time, because the nodules have started to obstruct my airway, my voice, and occasionally cause me to choke, it was recommended that I remove the thyroid. One doctor said he would take just the right side, but the doctor I chose said he would remove the whole thing - one, because if it comes back showing some cancer cells, they'd have to repeat the surgery, and two, since there are multiple nodules (on both sides), if they continue to grow at the rate they have been, it's possible to eventually need the other side removed anyway. And I truly don't want two surgeries! I'm super nervous, concerned about whether my voice will be alright, and about taking this thyroid medication for life. I don't want to gain weight. So, surgery is scheduled for Monday. I have lots of support, and I'm glad to have found this site. I pray that everything will be fine.
Thank you to Julieloo and you Suzie for your responding back to me.
Spoke with nurse yesterday about increase in swelling and nothing to
worry about unless it gets larger. Interesting thing was that it really
didn't start to swell much until almost 10 days after surg. and after
much discussion with nurse we thing it's because I was chewing gum on
Sunday.She thinks its because of over using muscles by the chewing that
it is swelling more.
I told her about your website and how much it
helpped me and how much it would help other patients prepare for
surgery.
You know that they can tell all that you need to know but
there is something that feels more comforting about hearing what real
patients have experienced and are experiencing same time that you are.
So keep up the good work!
Suzie-
Had a complete thyroidectomy yesterday and am feeling better than I expected today. I'm able to talk but swallowing is more difficult than yesterday. The main problem I had was a tremendous back ache which I think was from the anesthesia. I took vicodin twice but my neck really didn't hurt that bad and it didn't help my back at all, so I stoped taking it.The back pain is gone now. I'll probably just take an OTC pain medicine but will go back to vicidin if the neck gets worse. I found out right after the surgery I had no cancer so that was a great relief. Thanks again for your site- it was very helpful and I really thought I was prepared going into the surgery.
Hi Rene - my middle name is Rene spelled like yours!
Sounds like your recovery is going well - I did have some numbness, which was kind of hard to detect since I tried to avoid touching or putting pressure on any area of my neck. I would definitely keep an eye on that and report to your doctor if it doesn't change in a couple of weeks. Hopefully you have a dr appt scheduled for follow up anyway. Wish I would have thought about the peas - that would have totally been better than my ice pack! The swallowing and thickness feeling will get better every day. Good luck and hang in there!
I would say to be paitent with yourself as your body goes thru the healing process. We all heal differently, and that being said- I did have some numbness too after my surgery. It did subside as I progressed in my recovery. I wasnt in any real pain- i kept taking my pain meds in and out of the hospital, and tapered them off when i got home. I had a complete Thyroidectomy, and things looked great- yet they did find cancer. I type those words, because- I have been told by many in the medical community- to get thyroid cancer- is a lucky kind of cancer to get. Mine was stage 1 multifocal- ( on both sides of the thyroid). Yet I did go thru the i 131 treatment and will take my 6 month Scan late December. This whole surgery- recovery- and if you are to be on them- Thyroid supplement- - is a journey. The best thing to do is embrace it.
The thyroid is like the furnace control center for the whole body. If yours hasnt been functioning properly, its going to take time for your body to heal, and get back to functioning normal.
I wouldnt worry about the numbness, yet talk to your dr about it, or leave a message for his office. Keep in communication with your Dr. is key to this whole process. Make them listen!!
Suzie,
Thankyou so much for this site I wish that I would have found it before my surgery. I had a left hemi-thyroidectomy and my isthmis removed as well on Nov. 5,2009. The surgery went well and everything points to no cancer should find out for sure Monday. I really didn't experience any pain and never had to take any meds. It's just uncomfortable to swallow and I feel like I constantly have pressure on my throat at the surgical site almost like a lump in my throat feeling. Not sure if it's from the swelling above the surgical site but does feel a little better after applying a small bag of frozen peas to area. I find that the frozen peas mold around the neck better than ice. My biggest concern is the numbness that I feel starting under my chin and going all the way down to the surgical site. I am told that there are many nerves in this area and that this can be temperary or perm. in some cases. I have read all the blogs and didn't notice where anyone else has experienced this did you? Thanks again for all the good you are doing for patients and their fears. I have to say that it has been pretty easy going after this surgery the hardest part for me is relaxing so that I can heal.
Hi! I just happened upon this website while looking for recovery times. I'm due to have my right side of the thyroid taken out in a couple of weeks and have been worried. You guys sound so upbeat which makes me feel better about this. My only problem is that I have a two year old that I will have to take care of. Not sure how we are going to do with the bending and picking up part. Not sure how much help I'll have and for how long. I'm sure it'll all work itself out. Guess I worry a little too much. I can only hope that my recovery time is as much success as some of you other guys!!
Suzie-
First, thank you for starting this site for so many have gained information. I laughed out loud when I read your comments as many of those thing I would have also done- especially the googone. It's only by the grace of God that I found this site since I'm definitely not an Internet guru. My thyroid surgery is Monday 11/16. I'm a little nervous about the surgery and actually after reading your blog I felt better but the comments made me a little bit nervous. I was just trying to ignore it and figured I'd come out on the other side and deal with it. I had radiation treament in the 50's and the biopsy could not determine if the nodule was cancerous so hence the surgery. I'm going to contact my Dr to see if a partial is an option. thanks for all the great info and photos - Not so scary now!
I still have problems with swallowing liquids after 2 months of surgery. It makes me choke. I also have problems swallowing food.
I had total thyroidectomy on Sept. 30, 2009 because I had thyroid cancer. I have not been able to talk louder than a whisper since my surgery. My right vocal chord is not working. My doctor says he stimulated my vocal chords and is surprised that I have no voice. I still have swelling 2 months later, Nov. 7, 2009. My scar looks good. I have been putting 100% emu oil on it. Super Supplements told me it goes deeper into the tissue to help heal.
Has anyone out there had any problems with swallowing liquids after thyroid surgery. I had a total thyroidectomy May 2008 , have had a very squicky voice,also when swallowing liguids it's very easy to get strangled. I have seen an ENT who says that my right vocal chord is paralized an has referred me to otolaryngeal speicalist. The ENT and the surgeon thought my vocal chords would return to normal wirhin 6 months and if not within 1 year and neither has happen. Does anyone know anything about how they can repair paralized vocal chords,also called recurrent laryngeal nerve(RLN)
Suzie,
Thank you so much for your story. It is 32 days after my surgery and all was going well up until my recent check up, when the surgeon poked and probed the incision area...now I am so sore and it has been 5 days since he checked it. I was putting an ice pack on it and it was helping but I thought I should check to make sure it was ok to do that, and I stumbled across your site. Yay! I can do it! It is not red, hot, nor do I have a fever, so I do not think he disturbed it to the point of infection...but I was sure glad to see someone else used ice too!!! I couldn't find anything else about ice use this far after surgery until I read your blog. Thanks again for making me feel normal!!!
I am 11 days out from having a total thyroidectomy. I had a lump the size of a plum. I was glad to hear from you Suzie that it took you about 17 days to fully recover. My doctor said a week and I am feeling very incompetent for not being totally back on my feet, so your post helped in that department. I am on .125 of synthroid and I was wondering if anyone has had any dizziness, nausea or depression. I am experiencing all three and wanted to know if anyone else is having these symptoms. I'm not sure if its just because its taking so long to heal or if its a result of not having my thyroid and being on the medication.
Thanks,
Anne
You're welcome - glad it helped! I must say the post surgery pictures kinda freaked me out too! :) Good luck meeting the surgeon and making your decision. Hopefully the surgeon won't make you rush it. Have you had your nodules biopsied or do you know if they are benign? That might help you know if urgency is an issue at all.
Again, good luck!
Thanks for sharing your story! I have been scouring the internet for a real life account of what to expect. I have been "watching" my thyroid nodules for a year now. My doctor was a little non commital about surgery or wait and see. I guess "wait and see" wasn't the choice she wanted me to make. Last week she pushed me in the direction of the surgeon who I go see for a consult on Tuesday. I have a few but only one the they say is large and it is only about 3 cm. I would not have known it if not for the doctor feeling it. I can't see it like you could yours. Oh me oh my, your immediate post surgery pics freaked me out! Thankfully it looks like you healed up very quickly. Again, THANK YOU for sharing your story.
Hi Ally! I remember still having some swelling for about 6 weeks - very minimal and right around the incision. Felt kind of "thick". I also had a partial thyroidectomy - no meds and no weight gain. My doctor said that's pretty typical for most people. Glad it went well for you!
How long does it take for the swelling to go away??
I had a hemi-thyroidectomy on Sept 16th. Everything went well but I have some swelling above the incision. I also have concerns about weight gain. My thyroid was functioning normaly except for the nodule that was found on it. They removed half of my thyroid and assured me the other half would do the job without meds, I find this hard to believe!! So far I haven't gained anything, but I'm waiting....LOL
Yeah Mark! I'm so glad things went well for you. Hope your recovery continues to go as smoothly.
Hi Ginny - Good Luck! Sounds like Surgery will be a good thing for you and you'll feel like a new person! Take good care!
Hi Everyone,
I am having surgery tomorrow. Having the whole thyroid out. Mine is hyperactive and making me very ill. I have tried the pills, the radioactive iodine and now this. Surgeon says my thyroid is very large. I am not looking forward to the surgery, but am looking forward to getting well. I have been ill with it for a good year! I love your site and all the messages from everyone. Thank you so much! I'll let you know how it goes. Ginny
I hope this message gets to suzie and if not I hope you will resend it to her.
I had thyroid surger September 14th and Jefferson by Doctor Pribitkin.
I started around 10:30 and I think it lasted around 4 hours because I was informed I came out about 3pm.
The surgery went great but I was out of it til I got a room around 8pm. To me it feels like a giant paper cut.
I went home the next day after they drain my neck because my surgery was to remove a goiter (hereditary).
Today, I feel a pinch or paper cut feeling when I stretch too far or wash to vigoriously, not I take my time.
I start using the fade cream tomorrow and to date beside people asking me the same questions I'm back to work and feeling like I need to sit up for a while, good luck to anyone having surgery on their thyroid and keep your faith!
Hi Susie, Well my surgery is over and the final reports are in. My nodule was benign!! Yippee!! The surgery in itself was a piece of cake. It was the aftermath that just about did me in. I came out of surgery with a migraine. I have had migraines over the years but not a one in about 7 years. This one lasted for 2 days and was one of the worst I've ever had. It came with all the trimmings too! I was on nausea meds and dolotin for pain. I came home from the hospital late Thurs. evening and Friday afternoon I was back in the ER. I had a virus that was running rampant. Back on dolotin and nausea meds. If not for those 4 post op days I would have been up and running right after surgery. I was able to swallow, turn my head completely to the left and the right and sleep on my stomach, side and back from the first night. I never felt any pain from the surgery. Right now though I am still quite weak and am only able to keep crackers, jello and soup in my stomach.I have a small incision, about 1 1/2 inches long that I've been able to touch from the beginning. All in all, I am so happy about the outcome. I'll post again when I have my energy back. Good Luck to everyone out there. I'll be praying for you all. It works, Mary Lou
HI, I WAS JUST BROWSING THROUGH THE INTERNET AND CAME ACROSS THIS PAGE. I HAVE GRAVES DISEASE AND ACCORDING TO MY DOCTOR THERE IS A 15mm NODULE ON MY RIGHT SIDE. I WAS GIVEN THE OPTION OF THE PILLS OR THE RADIATION LIQUID. I DID ALOT OF RESEARCH AND DECIDED TO JUST GO WITH THE SURGERY. MY DOCTOR TRIED TO TALK ME OUT OF IT, BUT I INSISTED THAT I DID NOT WANNA GO THROUGH THE WHOLE MEDICINE PROCESS. JUST 6 MONTHS AGO, I WAS 50 POUNDS LIGHTER AND PERFECTLY HEALTHY (IN MY OPINION). IVE READ UP ON THE SIDE EFFECTS OF THE MED TREATMENT. WAS ANYONE ELSE OFFERED MEDICINE AND OPTED FOR THE SURGERY?
Hi Mary Lou! I'm glad you found the site and I hope it helps you feel calm and prepared for your surgery. Regarding some of your concerns, I read through some old postings (see People Power Granny from april 7 and Becky Graven from Aug 4 -she's age 71) - they both had positive and successful surgery experiences. I believe most people are able to monitor their energy level with their medication, if needed. Be sure to tell your doctor your concerns about that.
In the meantime - good luck with your surgery! I'll be praying for you and waiting to hear back from you when you are able to post :) Take care! Suzie
Hello Patty,
I just saw your post from May 17th but haven't been able to find one since your surgery. I posted a note last night about my upcoming surgery in just 3 days but haven't seen it posted as of yet. I'm hoping you can give me an update since you were the only one mentioning Hurthle Cell Neoplasm. I was diagnosed with the same thing. Any info or updates would help me greatly I'm sure.
Thanks in advance. And a BIG thank you to Suzie for initiating this forum.
Mary Lou in CA
Hi to all,
I'm in awe with all that I'm reading here. I'm hoping this comment gets to the board since I have no idea what I'm doing when it comes to computers. But here goes.......
I'm 60 10 yrs old. (sounds better than 70) and will be having the left side of my thyroid removed on Tues. Sept. 15, 2009. I was diagnosed with Hurthle Cell Neoplasm with Hemorrhage. I have never been diagnosed with thyroid problems. My nodule was found quite by accident. I was having a follow up CT Scan done of my chest for something seen on a CT Scan of my abdomen that showed something in my chest and that resulted in showing the nodule in my thyroid. I had an ultrasound done and then a biopsy. This was about 6 weeks ago and here I am, having surgery in 4 days. Prior to this diagnosis I faced an extremely stressful personal family problem. This occurred the day of my biopsy. I'm not sure if the biopsy caused fatigue or if it's a combination of things but I am very, very tired and I haven't even had the surgery. Has anyone experienced this? Are any of you my age? I lead a very active life and am concerned that at my age I may end up slowing down. I've lived a full life, I've had my share of surgeries and medical issues along with raising 8 children. I was sure that I was ready to age gracefully but now I'm not so sure.
Hope to hear from someone and I'll post a note after the surgery.
Hey Suzie, thanks so much for your sharing. Going for the hemithyroidectomy this week. have too many things to worry until don't know which should come first.Probably have to pray that will wake up after op firstly?:) I even have a nightmare that I forgot fasting on the op day:)
Umm,I aslo wonder how come nobody went to endoscopic thyroidectomy which is scarless.
Last but not least, I wish whoever has gone through this will live stronger than before. Just survive as Lance Armstong.
Good for you Carole! I'm glad you found the site helpful and that you are recovering so well. I completely applaud your decision to take your time going back to work! I'm convinced it will be better this way in the long run. Hope things continue to go well for you! :)
Hello Suzie! I too wanted to share how grateful I am to have found your website! It has been a real help being able to read about how other women have handled this. Your section on work has helped me to decide not to push it! It really is amazing how you can think you feel great, but your body does need time to heal. I saw my surgeon earlier this week and he urged me not to push myself too much. I am a little swollen from over use and he cautioned me not to do too much. I think as women, we often have a hard time with not doing too much for others. This time, with the help of this site, I have decided that I am going to put me first! Thanks again for keeping this going! And congratulations to Nicole and Marie! May God grant you a speedy recovery!
Nicole! Good for you - glad things went so well for you! Wish you continued good recovery!
OMG! I had my thyroidectomy yesterday and am home now. I feel great! I haven't taken any pain meds. I can swallow, turn my neck side to side and am already working. I even worked out for 35 minutes. Recovery really depends on the person. :) The surgeon said I get the lab results on Monday. He said the thyroid looks clean and that the cancer appears to be contained. Life is good!
Hey Pele - how was it going back to work??
Well, so far so good! I had my surgery yesterday morning (right lobectomy to remove fist-sized nodule), and came home from the hospital today. It hurts to swallow (from the intubation), but I'm weaned off the percoset. I find it very hard to get out of bed - never realized just how much pressure is on your neck when you get up. Yikes! Now I just hope for favorable biopsy results.
Hello Gwen: DO NOT WAIT to get your surgery. I just had my surgery on August 18th. I had a tumor in under my chest bone that they did not see in any tests or scans. If I would have waited much longer, they would not have been able remove it because it was so close to my artery. My doctors first thought my tumor was cancer. But three days later, the results came back that it was NOT cancer. YAHOO! Thank you God! My pain was not bad at all. I was off all pain killers within four days. I am a little stiff but I have been able to go out to dinner and see a movie. I too am a U-2 fan, so I hope you get to go. Just be careful. U2 fans are very polite, so I doubt you will not get pushed. Just chill out and enjoy the concert. As far as you picking up your little one, you should listen to your doctor. You don’t want to damage yourself and have to wait even longer to hold him. My last piece of advice is, let your family and friends help you. Their love will help heal you! Good luck!
Hi Nicole,
I had a total thyroidectomy done on Monday, August 10th (2 weeks today). I too have a very high tolerance for pain (at least I thought so before the surgery). You will not be able to pick up your toddler for at least a couple of days after surgery. In fact, I could not sleep for more than 3 hours at a time without waking in pain. It was very uncomfortable. I stopped taking my pain meds the Thursday after surger, and finally felt a bit of normalcy about 6 days following the procedure. The surgery itself was a lot calmer than I expected. It's just the after effects. If you can, please make arrangements to have someone at home with you, or send your kids to a sitter to give yourself time to heal. I too am a mother of 2, and of course our first priority are our children, but you'll need time to recoup.
As for the lab results, I think it varies. My doc checked on me the following morning and told me that my nodules were benign and reconfirmed that upon my doctor's visit the following week.
I wish you well with your procedure.
Hey there. I agree with Suzie, it's going to be difficult to lift for a few days. I had my surgery on the 11th and my neck is still stiff and I still am finding it hard to get a nice sleeping position. Good luck with the surgery.
Hi, how much (in pounds) can a person pick up after the surgery? I have 9 week old twins and a 2 year old toddler (and am a single mother who works full-time). Can I lift 10 pounds (1 twin) without a problem the first day? Are you saying after 2 days I can lift 25 lbs? I have a very high tolerance to pain.
How long does it take to get the results of the thyroid analysis? I want to see if I have to get radioactive iodine treatment so I want to see if the cancer was localized in the thyroid (left) or if it spread to the right side. Does it take a few days? Will I see the doctor at that point to discuss options?
Hi Gwen! My first thoughts are U2 yes, picking up no! At least for the first couple of days. It will be hard enough to walk and move your neck, plus pick up your child. Hopefully you can have someone help you for the first 2-3 days. Good luck - let us know how it goes for you!
I'm so glad I found this! My surgery is scheduled for Sep 22 ... and I'm going to a U2 concert 9 days later. I sure hope I'm feeling up to it! I couldn't schedule the surgery any later - but part of me hopes that during the pre-op the surgeon says it can wait - my nodule is only 0.5cm and the FNA showed "suspicious" cells. I have a non-walking 25lb 13 month old, and I've been told no lifting for two weeks. Sure hope that advice is overkill, as I don't think I can go that long without picking him up.
Any thoughts on the picking up advice?
Donna, I was diagnosed with papillary carcinoma due to the nodule on my left thyroid gland. I have my thyroidectomy on Wed. I was told the radioactive iodine pill was mandatory. I would love to decline it. What did you doctor said are the pros and cons? Why did you decline it? I don't want to do the radiation - it doesn't feel right, but I worry that the cancer cells might spread somewhere else in the body. Did they put you on thyroid meds immediately after the surgery?
It's been 12 days since my surgery and I am starting to feel better. I have to say this surgery has taken allot out of me! I was able to start driving yesterday, I had a hard time moving my neck before then. I get tired easily but everyday is an improvement. I am actually going back to work on Monday. Thank you for everyone who shared their story, it really helped me to know what to expect. For those who are getting ready to face surgery just remember to take it easy and expect to be tired for a while.
Hi Nicole,
You should be put on levothyroxine immediately following surgery, but listen to your doctor as to when to take it. If they prescribe synthroid, you may get the generic levothyroxine instead. The difference comes from the formulation of the generic being that it is from a different company, but they are all chemically named levothyroxine, but being that the formulas are not identical, you could have some unpleasant side effects, be sure to let your doctor know immediately and he/she will decide the correct course of action to take. As for the weight gain, I am not a petite woman, but I have not gained any weight, however I have not lost any either. It really depends on you, and whether the doctor you have starts you on a high enough dose. the best advice I can offer is that you watch what you eat (or if you eat well then I wouldn't worry about it!)
when i was 14 a lump began to grow in my thoat and we got it checked out. after a few years it grew to the size of a golf ball. i had my entire thyroid removed in December of 2007 as well as a calcium gland. several tests before hand had indicated it was cancer. it wasnt fun or pleasant. i was 16 and it was my first surgery. the pain was unbearable for me. but not so much that i couldnt eat some wendys chicken nuggets. i was starving and jello wasnt cutting it. swallowing hurt so badly, but i was hungry. when i went home the next day my, life consisted of sleeping and engorging in pain medicine. dont remeber much but sleeping in moms bed and waking up at various hours in extreme pain. having cramps everytime i fell asleep, and having problems using the bathroom (its embarrassing but true) made my life hell. even weeks after. its healed now and all but im still having trouble getting the right dosage down. i havent felt like myself since so its hard to tell what is supposed to feel right. synthroid is the only thing that has done right by me. levothyroxine made me tired and sick. now i have my synthroid but am stuck on this generic birth control that is making me lazy and nauseous. i dont know if ill ever feel normal. i regret this stupid surgery. it has changed my diet and everything. worst being you cant take synthroid with calcium, so i have to split them up during the day. its such a hassle. i dont want to deal with fiber one until i grow up a little. :( im happy to be alive but still. i deal with it and dont complain too much.
Because I kept half my thyroid and my levels have always been normal, I'm not taking any medications for this. So I'm sorry I can't tell you more about it. Hopefully someone reading will have info for you. Same is true for weight gain - mine is all snack related and can't be blamed on thyroid :) Good luck!
Yes, can you tell us about weight gain? I am 95 lbs and very petite. Will I be given synthroid or thyroxin immediately? I am on synthroid now and it is only 75 mcg. Once my thyroid is removed, will they put me on a higher dose that day? I just lost all of my pregnancy weight and don't want to gain it all back due to the thyroid removal. Please advise.
Hi Nicole! Congratulations on your twins! I'm glad you're feeling pretty good about your surgery. I know you're needing to get back to work quickly, but be sure to get enough rest too! Between your twins and your neck, don't overdo! :) Let us know how it goes.
Hello, all! I am scheduled for a total thyroidectomy on 8/26/09. The lump on my left thyroid turned out to be papillary carcinoma, so they are removing both sides. They diagnosed me while I was pregnant with twins, and now the twins are 8 weeks old. I have a high tolerance to pain (I walked around the day of my c-section without pain meds), so I am hoping to be OK as far as pain goes. I work online, so I am also hoping to continue working (since I don't get a day off due to being self-employed). I am a bit apprehensive about the whole thing, but I know it has to be done sooner rather than later. Your blog and pictures helped me enormously. I was actually glad to see that the scar is not very noticeable. I am very young and worry about the scar and discoloration. I will let you know how it goes!
Hi Suzie,
I don't think I ever said how much you blog helped. i happened upon this site the day before my surgery... I was feeling very anxious, but after realizing I really wasn't alone, i felt much better, and as far as the calcium info, you're welcome, I'm glad to share! My doctor didn't mention very much about the calcium to me either, but one of my professors is a neuroendocrinologist, so i asked her some questions as well, and that is where I got my info. thanks again!!
I have had throtoxicosis for 17 years - not active - but has flared up 5 times now. So It is recommended that I now have it removed. I am absolutely terrified. I do not want to gain weight - I dont care about scarring as I have not seen anyone with a big scar - you can hardly see them. I am 56 Kilos dont know what that is in pounds! No one is coing back and letting us know about weight gain! If its inevitable in the short term whilst getting medication sorted out - how much gain will there be goven that I have never really been obese in my life.
HI CJ - you probably already called your doctor, but in my case there was definitely soome swelling (you can tell from my pictures). Even after the noticable swelling was gone, there was thickness all around the scar. Now all that is gone (6 months out). I hope yours is normal too.
Pele - that's GREAT! I'm glad to hear that. Sounds like your recovery is also going great. Yeah! Thanks for sharing!
Good luck Wendy! There's lots of good info from everyone here so hopefully you're well prepared for your surgery! Post back and let us know how it goes. :)
Hi Dona - thanks for the great info about the parathyroid glands and calcium. My doctor mentioned these things just in passing that mine were fine so I didn't ask more questions.
Thanks for the information ,I just didn,t uderstand what all the consern about calcium. My surgery really came out great, no pain at all afert a few days just like everybody swallowing is still a little bothered.
My doctor recommended the Mederma after seeing that the scare is clean. You can get the cream with SPF 30 (sunscreen) already in it. Goes on and off really good.
Before I had the surgery, I could not turn my head to the left, which is where my nodules were the largest. Now I can.
I had Graves disease and Hashimoto disease. With 7 large nodules and multinodular goiter. Again, I only wish that my doctor had found this earlier, my life would have been so much better.
I just found out that I will need a complete thyroidectomy. I am scheduled to see the surgeon on Sept. 4th. After reading all posting here I am not as nervous about the surgery now. The only worry is the lab report afterwards. Originally the endocrinologist told me I would need just a lobectomy, however another ultrasound showed that the goiter extended over both sides.
Hi Tina,
I didn't have any prolems with my calcium level after my surgery. However, there are four glands on the back of your thyroid called your parathyroid glands. These glands release a hormone called calcitonin which regulates the amount of calcium in your blood stream. These glands are important because if the amount of calcium is not regulated then you could have movement issues. Calcium does more than just help you build strong bones, it regulates nerve impulses and muscle contractions. Sometimes during thyroid surgery the para thyroid glands are damaged or accidently removed. In either case the regulation of calcium is disrupted, and your body doesn't use or store the calcium how it needs to be used in your body. In some instances, your body will pull calcium from your bones and the result over time can be osteoperosis. These reasons are just some of why it is important to regulate and maintain calcium levels.
That is awesome!!!! Yay for you!!! no worries!!!!!!!!
I had my thyroid removed on July 30th and still fell a little weak. I notice that none of you all have not said anything about taking calcium or not having enough of it after the surgery. The Dr. has been giving me blood tests every other day to try to level my calcium and it goes up and down,why is it so important for it to be at a certain level.
Oh and I had to talk to my Surgeon yesterday (yes he actually called to check up on me on a Saturday) He said that the pathology report came back clean, NO CANCER!!
It's been 5 days since I have had my surgery and thought I would send in an update. My neck is still sore, but I am not in pain. I get tired very easily and have not been able to sleep. I do not think I could actually work a full day yet but I may go back to work at the office part time and work from home the rest.
If you have not done your surgery let me offer this: Yes it will hurt for the first few days. Take your pain pills as scheduled! Don't skip a dosage cause you may end up in so much pain that nothing will help. Rest, rest, and rest. This has been the hardest thing for me to accept. I feel like I am being lazy but then I have to remind myself everything my body has been through this past week. I have stayed mostly on the liquids. I know swallowing the pills is hard enough so I have been staying away from eating solids. Good luck and I will post more in the next few days.
Maybe because of my weight I had both sutures and tape, never thought to ask. Good luck and try not to worry too much.
Hi there, I have a question. I just had a full thyroidectomy this past Monday. Thursday night, I noticed some swelling above the incision and where the drain was. Can anyone tell me if this is something I should be concerned about? I'm placing a call to my surgeon on Monday. Thanks!
So glad to have found this site! I'm having a partial thyroidectomy on the 24th to remove the right side with a cold nodule that is 5.3cm in length. Nervous as heck - mostly about the pain, final biopsy results, and having a horrible scar. But I'm praying and hoping for the best. Thanks for the advice on crushing up the pain pills....too bad the meds don't come in liquid form!
I should have also mentioned that I was hyperthyroid with a large multi nodular goiter that was pushing my trachia to the left. I also had two inconclusive biopsies done. I am bad about needles and the whole being awake while they do it had freaked me out to the point of needing Xanex. The surgery never bothered me since I knew I would be out while they did it. Since the operation my mood swings seem to have stabilized. I don't mine normal swings but mine were becoming extreme. Don't know if its the lack of stress or lack of thyroid but I am happy about that side effect! Thank you again for posting your story!
Hi!
I had my thyroid totally removed 2 1/2 weeks ago. I didn't have too much pain, never needed anything stronger than tylenol, but I seem to have a high tolerance, that's just me. What I AM is very sensitive to pressure on my throat. The pressure from the tape was a nasty unexpected surprise that nearly sent me back to the ER with a panic attack. It has given me a reason to practice some of my breathing/relaxation techniques from yoga class. My scar looks and sounds like your description, the sensation from the scar tissue is constant, so glad to hear that lessens in the future. My voice really took a hit, some days its almost nothing ... have to wait and hope for the best. I was off work for 2 1/2 week. The surgery really wiped me out and I am just now starting to feel almost normal. Crushing the pills and putting them in unsweetened applesauce worked very well for me. When my throat started feeling a little better I cut them in half to take, didn't try full size pills for at least a 1 1/2 weeks. Thanks so much for posting your story and photos.
Hi Maureen - I just had my thyroid removed on Thursday - total. First surgery for me ever - first hospital stay. Everything went well - surgery was on Thursday afternoon and was released from the hospital on Friday morning.
I have been splitting up the pills. I really hope I can sleep tonight. I am so tired but just can't sleep! I can say today was better than yesterday. I get tired really easy so I have been working from home. To those who are getting ready to have surgery the first two days were the worst, now I just feel tired with a sore neck, and throat.
Pele are you able to crush or cut the pills? That was very helpful for me. I don't recall itching - we must have had different incision processes. Sleeping will get better I promise! I hated to sleep on my back and was very relieved when I was able to prop my neck on a pillow and sleep on my side. Hang in there!
I had my thyroid removed Tuesday. I have been in alot of pain. Swallowing the pain pills have been a challenge. Not sleeping to well either at this point. I do feel better than I did yesterday. The biggest complaint would be my neck. It's really sore to move. Swallowing is painful so I have been on a liquid diet.
The incision is starting to Iche like crazy and it's very hard not to scratch it. I will keep everyone updated on what to expect in the next couple of days.
I, too have been battling loss of appetite. My sirgery was July 9th. I just had the blood work done and theytell me my thyroid levels are off "quite a bit" but supposedly it supposed to get better with time. Dr doesn't want to do anything for another 6 weeks--too long in my opinion. So. I've told them I will find someone else to treat me if I can't get in sooner.
HI
Im having surgery on August 27, 2009 gettting a total done on the right side. Nervous never have any surgery done and never was in the hospital and never was put to sleep.. Please advise Maureen
I was wondering, has anyone else noticed a difference in their appetite since having surgery? I am almost 2-weeks post-op, and I have not physically felt hunger. I eat because I know I should eat something, but I feel like I have no appetite... which is weird... cause I felt hungry before my surgery...
Hi Suzie,
Just wanted to let you know that the surgery this past Monday went well. I'm back at home and must say that I feel great(although I do have a very high tolerance to pain). I had a total thyroidectomy and 2 of my parathryoid glands were moved around. My voice is a bit hoarse, and really the only pain I get is from my neck being propped up in that tiny little foam pillow in the op room. I haven't slept for more than 2 hours since surgery and I don' t know why. I just want to give encouragement to those that are going through this...everything will be fine. As mentioned I was a nervous wreck before, but I can't be any more happier with the outcome. The scar looks great..I had my nurse take a pic when she changed the gauzes..it looks the same as yours in the 1st pic, but without surgery strips. Doc says this stitches will desolve on their own. I will start my thyroid meds tomorrow. Thank you so much for your encouragement.
Thanks Dona, well today is the day! I am a wreck, but I will let everyone know how it went in a couple of days.
Well i hope it is benign... that awful you're haveing trouble swallowing, but it will be over in a few days...the closer it gets to the surgery the more nerve-racking it gets. I was so nervous when I went I couldn't stand it. But it went just fine... keep us all posted after the surgery!!! Where are you having your surgery done? The doctor that did my surgery is on a research team trying to better the system they use to test thyroid nodules so they can avoid unnecessary surgeries and determine who is at higher risk for cancer (in your case the thyroid probably would still come out even if your biopsy had come back benign on account of the swallowing issues). but I am glad that someone is doing research so maybe it won't be so nerve-racking for people in the future. I will keep you in my thoughts and prayers.... it will be just fine =)
I am having mine removed because I have six masses on mine. I am having difficulty swallowing. They did the biopsy but they came back inconclusive. I am really hoping that they come back benigne. I have to say I am getting really nervous about Tuesday!
I have to go for cancer scans and bloodwork indefinately, they left the radiation treatment up to me but I declined, there's some bad side effects to that stuff and I don't see where the benefits would outweigh the risks in my case. why do you have to have your thyroid out Pele?
I'm glad I found this site, it's good to know what to expect. I'm having a nodule and the right half of my thyroid removed on August 19th. I had my pre-testing today and I think they are worried about me possibly having sleep apnea because I'm a heavy snorer and I sometimes wake up choking. If I do have trouble breathing after surgery they will have to hook me up to some sort of machine and I'll be in recovery quite a bit longer. My nodule is only 1.7 centimeters and I didn't even know I had it until I told my doctor that occasionally my neck would get sore so he ordered an ultrasound. They did a needle aspiration but couldn't get enough cells to determine if it was cancerous. The surgeon left it up to me as to whether I wanted surgery or not. My choices were surgery or a needle biopsy every 6 months indefinately. I'm a little worried about cancer, but I'm trying to be positive about it. I'll know when I wake up from my surgery if it's benign or malignant because they'll send it to the lab while I'm still under anesthesia. I made the mistake last night of watching a thyroidectomy on youtube. Not a good idea! Anyway, thanks again for posting your experience as it's been very helpful knowing what to expect post-surgery.
Dona I am relieved that they found it early. Will you have to do anything else because of it being malignate?
I had my follow up appointment (post-op)yesterday. I found out that I had a malignant papillary carcinoma, but we caught it early enough that it hadn't spread. Thank goodness!!! The tumor was huge, they took a pic of it so I could see, but all is well now other than feeling a little sleepy and weak, I am pretty much back to normal, almost 7 days later.
Hi: I had a partial and 1 mystery lymph node (was attached to my thyroid) on 7/29. I also felt this had taken over my life for the last 2 years. I had never even had one stitch, surgery or broken bone in my life, and hate hospitals and needles but I knew deep in my heart I had to do this. I cannot tell you the overwhelming sense of relief I felt when I woke up from the operation. Everything including the node was benign. I wish the same for you.
Hi Brenda,
I'm going to need surgery to remove my thyroid soon, within the next few weeks. Am having an ultrasound guided needle biopsy Friday to determine cancer. I also have soreness in my throat from enlarged thyroid (functioning normally, go figure!), hoarseness and neck pain and fatigue. After reading the comments left on here, I am feeling better about my surgery and having the thyroid removed. Been suffering with it for 16 years and it's taken over my life. I wish you luck on your surgery, Brenda, and to all who will have surgery.
For those of you who have had surgery, thank you for your comments. It's easing my mind and fears and preparing me for what's to come.
Cheryl
I had my thyroid out two weeks ago due to papillary carcinoma and was in the hospital 2.5 days total. My neck was sore, and I had a sore throat for a week, but I experienced soreness opposed to pain so I didn't take the pain med. What I am experiencing is that I am tired way too much, and a few other minor symptoms. The specialist says this is normal - to rest up - more bloodwork on the 15th of Aug, then meet with her on the 21st. At which time they will change me from Liothyronine (the temp med) to Synthroid. The scar looks better every day. For you who are heading into a surgery, I would encourage you to not fear it, but rather realize that whatever you feel after it is normal - so just go with the flow. Rest, don't lift, and eat soft foods until the sore throat goes away. Really, it's no different than having a sore throat before a cold. Use lozenges if necessary. Personally, I am glad to have this behind me. Though I don't care to take a pill the rest of my life, the fact is, I'll have to. Such is life ... Good luck to you all.
Hi I am 4 days post-op from my thyriod surgery. I live in Cincinnati, and my procedure was done at our Christ Hospital here. The surgery went very well, there is alot of pain the first day home, take your pain pills that they give you. Right now I am sleeping and eating regularly, swallowing is hard, but I have found that if you put your head down a little (chin to the chest) as far as you comfortably can, it helps your neck not hurt so much during swallowing. My neck is still tender, they used some type of surgical glue on my incision and it looks great! I can turn my head all ways, but it is tender and my vioce goes in and out and I can't yell, when I tried it hurt and my voice sounded like an angry parrot. But over all things went well, and try to use the restroom before they put the IV fluids in, I had to pee so bad right out of surgery it wasn't even funny I thought I was going to die. But surgery wasn't that bad, I was so scared, now I am glad its over!! I finds out the final pathology later from the nodule and my thyroid is going to be used in research to help people in the future with my problem which is sooo cool and they gave me a picture of it (i'm a nerdy health science major in school) so keep being confident, it will be fine!!
Brenda, I am also having surgery on August 11th. From everyone I have talked to I feel confident that my surgery will be fine. Good luck on your and keep us posted.
Had a total thyroidectomy on July 18. Wish my medical doctor had recognized my problem years ago because every dentist and doctor that saw me would ask if I had the doctor check my thyroid. Went to have my eyes checked and was told that I have graves disease and to get in touch with my MD, to do the two test on me. He still did nothing and for four and one-half years, I suffered. Finally, my arthritis doctor got the ball rolling.
I can not believe the differince in my face, before the surgery I looked like a toad frog in the face and had put on 40 lbs.
When I went back to the surgeon, he drained fluid from the incision and let me go.
The only problem that I am now having is being nervous to sounds and grandchildren. In fact, my entire family including 6 grandchilden and husband are at the beach now, but there is no way I could stand to hear the noise. I am wondering if anyone else has had this problem. Of course, I am still very hoarse.
For those who are scared, and I did a whole lot of praying, the surgery is a breeze. I am 71 years old. I had a very competent doctor at Durham Raleigh Hospital and only wish that I had done it years ago.
hi im so scared im having surgery on august 11th and my symtoms are just getting worse i had a needle biopsy and they they say the tumor is benign although i do have the symptons of a malignant tumor I have a cough hard time swolling pain in my neck i cant believe i have to go threw this
Hi Suzie,
Thanks for your reply. You are really heaven sent. i will be having my second opinion tom. GoodLuck to us all. I also have another concern in gaining weight. Im afraid of gaining weight lol. I will be having a total thyroidectomy, does anyone here had the same surgery that didnt gain weight?
Hey Suzi,
First day of work was great it was good to get back into the "normal" swing of things! You were right though voice fatigue ~ WOW am I ever hoarse, not painful really although it may be for those listening to me :-) I can see why you suggested the ice and to turn the phone off! Thanks Again!!!
Hi Belinda! Wow, you have a lot on your mind. I think my biggest piece of advice is to make sure you have confidence in your surgeon. He/she should be able to carefully monitor you for both depression and weight gain. (Congratulations btw on your recent weight loss!) I would request pre-scheduled follow-up appointments, so you will be able to plan on them (of course, as allowed by your insurance) and just see how things go. If your surgeon does lots of thyroids, your scar should be fine (red/thick at first, as you know). And I did not think about chickening out. I am not a fan of body parts that grow extra body parts! Belinda, stay calm and strong! I'll keep you in my prayers. Please let us know how things go for you!
Hello CJ! I'm glad you found the site and it has helped! I think I was lucky to only have about 6 days between my decision to have surgery and the surgery itself - very little time to worry! Sounds like you have things well in order! Best wishes for a successful surgery and recovery - please check back with us!
Hanife I'm sorry you're feeling so discouraged. I hope you get your biopsy results very soon so you don't have to worry about that anymore. Soon all your bandages will come off so you can get the first look at your incision - it will be red and thick - DO NOT BE ALARMED at this! It will be 2-3 months before it turns into the slim white scar I now carry. Try to remain calm Hanife - hang in there!
Yeah Sam! Hope your first day back at work was GREAT! Glad you're feeling so well!
Good luck Sue! I'm sure it will be fine - be strong!
Hi Audrey! My surgeon was a general surgeon who was a self-professed "thyroid fanatic". I would suggest finding out how many thyroid surgerys your ENT has done and see if your confidence improves. It is always your right to seek a 2nd opinion - just make sure it's in your health insurance. Good luck with everything!
Hi there, what kind of doctor are doing thyroid surgery. I am scheduled to have a total removal of my thyroid on sept 2 and my endocrinologist referred me to ENT ( Ear, Nose & Throat doctor ). And im kinda having second thought of whether to get another doctor, a surgeon.
I'm having my thyriod taken out this thursday @ the James Cancer Hospital ub Columbus Ohio I'm really scared I know I'll be alright
Hi Suzi,
Well tomorrow I go back to work after a two week recovery period! I am ready, my scar looks good, very noticable but so low that a t-shirt covers it just fine! My headaches are finally gone and I only took my perscribed pain reliever for two days as it made me sick, good ole tylenol and ibuprofen worked just fine, I could have gone to work earlier but still get kinda shaky when I over exert and as I manage a pool and fitness center over exert is all part of the game. To every one who will be having surgery I truly believe the anxiety before and after are probably the worse parts, and Suzi's blog is a FANTASTIC source of info! Thanks so much because this site has been a God send to me!!
Sam
Hi Suzie, just wanted to say "thank you" soooo much for your thyroid blog. I'm having a total thyroidectomy on August 10th and I have been freakin out. I'm having the operation due to multinodular goiters with nodules on both lobes. Unfotunately for me, this is the only option. I was first diagnosed with this 3 years ago by my GP, and from that point on, I have been a nervous wreck. I've had 2 fine needle biopsies and they both came back normal. But the growth is soooo large in my neck and you can definitely see a bulge when I swallow that I just decided to whack it out. I made my decision in June of this year, and got a referral from my endocrinologist. Like others, I've definitely thought about not going through it.....and to be honest the only reason I wanted to back out was due to my fear of the after surgery scar. I must tell you that looking at your recovery process have given me a sigh of relief. Your scar looks great. Thanks for sharing!
Hanif I am sorry you are feeling so bad. I am having a full removal done next tuesday and I am so scared. Please keep me posted on your progress
hi, i had a full left and middle removal of my tyroids on weds so its been 4 days and i feel horrible, i keep crying and feeling nervous about scaring and the fact that i have a slight nodule still on the right side is freaking me out my surgeon decided that he would do a full removal if needed but he would only know when he opened me up whether i needed a full or a partial removal. the operation went well and he decided to only take the left and middle part. now im just worried about what my biopsy results are goin to be and that the nodule left in my right tyroid will mean i will have to go through another op ahhhhhhh idont now im just so depressed
Dear Suzie - What a great service you are providing here. My surgery is scheduled for 8/20/09. I've been to at least 7 doctors since May. I have multiple nodules in my thyroid. I have had 2 fine needle biopsies. All of them were benign BUT all of the sample sizes were too small to be conclusive. Every doctor I've spoken to has had a different opinion about what to do. At this moment, I've decided to have it out. It will be a total thyroidectomy. I'm a nurse and have become quite an expert at scaring myself by looking at every single article about this on the internet. I'm really worried about my mental health after ssurgery as I had serious problems with depression many years ago. Thyroid medicine was one of the only things that helped. I am also worried about gaining weight as I just spent the last 18 months losing 63LBS. And lastly, I am worried about pain. I am also the main bread winner in my family and hope that I have enough vacation/sick time to get through the recovery period. I am also seriously thinking about chickening out. I wouldn't have this surgery at all if I could be assured that I have benign disease. Did you ever think about chickening out? I'm 56 and not so young and spry anymore. Thanks for everyone's postings. This website is truly a blessing. Thanks!
I had my left thyroid removed because of a nodule on july 25, 2009. the surgery went fine but i'm nervous about the recovery. After reading Suzie's story I feel better because I now kinda know what to expect and why I'm having some of the symtoms I'm having. My nights are more uncomfortable than my days, but from Suzie's story they will hopefully get better. Thanks Suzie
Thanks for the reply. All of my thyroid must come out unfortunatly. Less than two weeks to go before the surgery. I am trying not to dwell on it. It needs to get taking out and I know that. I am just a wuss!
Hi Jessica! I'm glad my story helps. The 2 concerns you mention - scar and voice - are 2 things my surgeon specifically addressed with me. He is a specialist in thyroid surgery, and he said it was his priority to make sure the scar would be as minimal as possible. When he told me about possible voice changes, he again said that he took special pains to take great care when he was moving the vocal cords. I say this now to recommend that you specifically ask your surgeon to be careful in these areas! It may be assumed that he would be, but I think you should mention your concerns. I think my scar looks great, even with a summer in the sun. And my voice finally sounds totally normal to me when I talk - it has taken 5 months for that. Other people said it sounded normal to them immediately after my surgery, but in my head it was a little hoarse. I'm not a singer of any kind, but when I sing out loud (alone!) in my car, my voice still sounds hoarse and my throat will hurt quickly. Doesn't stop me from doing it LOL! And - 8/5 happens to be my birthday, and I have declared that only great things can happen that day! Good luck with everything and please report back!
Renae! Good to hear back from you! Sounds like you're in good shape and prepared for surgery - yay! As far as taking time off your job - I know I needed 2 weeks - but some people writing here have not needed that long - guess each person needs their own amount of time. I would definitely suggest at least one week - maybe you can try going back after that if you feel up to it, with the possibility of taking off again if it doesn't work out. Good good luck with everything!
Hi,Suzie...just checking back in with u once more lol so I've went to the doctor 3 more times since I've last spoken to u an I meet with the surgeon at his office at the hospital on friday...I also found out that I will have to have a whole thyroidectomy...so {I'm not sure if i know how I feel} lol but I'm not scared an I do have a job now..YAY ME!!! lolbut it does consist of alot of bending kneeling down and things to that nature lol but how long do u suggest I be off work?/? & thanks again!!
Dear Suzie,
Thank you so much for documenting your surgery. I am scheduled to have the left side of my thyroid removed 8/5. I am very nervious. I don't heal well after surgery. I am manly concerned about the scar & future vocal challanges. I talk on the phone 8 hours a day for my job. I have already noticed a change/horseness in my voice & scarred of what will happen. But reading your story does set my mind at ease a little. I guess it's the not knowing that is bothering me the most. Any further advice?
Hi Samantha - wow, sounds like you've had a crazy week! I'm glad you're feeling as well as you are. I did not have headaches after my surgery - I wonder if your body just didn't have the chance to rest that you needed? Sounds like you're doing the right thing with the ibuprofin instead of the pain medication, since the surgery site is not what bothers you. I'm glad you have another week off and I'm sure you are too! If you don't have a doctor appt coming up before you go to work and the headaches don't stop, maybe you could give him/her a call, just to keep them in the loop about your progress. Rest up this week - I hope you feel great really soon - also hope your daughter is doing well! Take care!
Good afternoon to all! Well i had my entire thyroid removed may 28 (feeling good a little wild at times )and Just returned from having my i-131 treatment. My surgeon as i wrote earlier stated i had papillary on the right sid cancer ..at the wonderful hospital that received my treatment there was actually told have also follicular adn had 2 lymph nodes removed. That didnt change the treatment i was given 104 millicures of the i-131(3 capsules carried by a readiation tech in a metal box..then in a metal can the took out a glass vial with the capsules) i think that made it worse than what it was.I was scared for the first hour waiting in isolation but i felt fine the whole time a weird sense of peace and relaxation..tired of course but felt like a bad sore throat , no nausea, just kept sucking on the hard candies.i will say it felt kind of weird when i came out the isolation room..but very happy and feeling good...well 6 months later i must return for the scan..dont worry all my scar is looking really good and i had my surgery may 28..a little sore at times but bearable :) Everyone hang in there and feel better soon..Best wishes to All. Thanks again Suzie for starting this wonderful support system.Hope you are well.
Yasmine
Wow, well I had my thyroid right side removed on the 20th , home on the 21st, then my little girl ended up in the hospital for something on Thursday the 23rd so I was there with her for several days, but the reason I am telling you all this is that although I am VERY fatigued and had more stress than I want to admit I made it through and my scar site looks pretty good but to FOLLOW Suzie's advice don't plan on going to work or doing to much too soon, I am struggling but have another week of work off, mainly my problems are from headaches and plain ole fatigue, did you suffer from headaches Suzi? I WON'T take my perscribed pain reliever as that makes me feel WORSE! I am living on Tylenol and Ibuprofen. I can't wait to feel like my ole perky self again!!
Hi Pele - I haven't had any weight issues related to my thyroid, but my "levels" have always been normal. I think the weight gain comes from your hormone levels not being what they are supposed to be. Thankfully since I still have half my thyroid, it keeps my hormones normal. Good luck with your surgery - wishing you a speedy recovery!
Hi there, reading your story helps me. I am having surgery on August 11th. I do have a question for you. Have you had any weight problems? I'm sorry for asking but I am so scared about gaining!! If you don't want to answer I would totally understand. Thanks for reading this.
Secoyah - they'll probably do the biopsy and ultrasound at the same time. Just take deep breaths during the whole thing, and maybe keep your eyes closed. Ask them to give you a heads up each time they take a sample (they may take several). It WILL NOT hurt - you will just feel slight pressure. I promise - you can do this! Stay calm and breathe!
Hey, don't be scared! I was terrified too but I had my surgery (partial thyroidectomy -entire left lobe) on Monday (2 days ago) and I can't believe how fast I'm recovering! My doctor is very conservative - keeps his thyroidectomy patients in the hospital overnight after the surgery - and so I had excellent care for that first 24 hours which is when anything that can go wrong is most likely to. But I had no problems. Will you have pain? Yes! But it's very controllable and gets better hour by hour. I'm writing this Wednesday night and can turn my neck almost like normal. Have cut my pain med schedule down by half. The main thing now is that the Steri-strips are making my neck itch like mad and there's not a thing I can do about it! BUT - if you have a good surgeon (make SURE you have one that does LOTS of thyroids -if he/she doesnt, find one that does - VERY important!), then you can relax and know that all will be well. The complication rate for thyroidectomies (complete or partial ) is exceedingly low.
Good luck and let us know how you do!
Um... they want to slow it down because its only 1 ceni so they say... and so the gonna do a biopsy and a ultra sound... the ultra sound ok... the biopsy.... egh... i aint really feelin that,,, then they say they have to put a tube in my nose to check my airways... im soooooooooo nervous... i dunno how to calm down.... egh... all this happens friday... no where xcited i am
Linda good luck with your surgery! I'll be wishing you a smooth and speedy recovery!
hi Jane and Secoyah - I really understand how you feel! It can be scary - but I hope you can tell from all these stories that it really will be ok! Don't read too much on the internet - definitely stay away from youtube - and ask your doctor any questions you have. Try try try to stay calm! Let me know if I can help in any way!
HI - thanks for the info and esp. the photos! I have this surgery tomorrow and this has been the most helpful info I have found!
Many thanks!
Hi!!! I feel the same way..Was told about 3 weeks ago i need surgery. Got to go in Friday this week..Feeling scared, really scared. will let you know how I GET ON.
Hi Ronnie,
Wow good for you. I hope mine is also benign. How was the surgery? Is it that painful? or is it tolerable? When are your plans to return to work? Did the doctors stitch it? or they used the surgical strips? Hope to hear from your story again. Get well soon bud.
Hey dudes n duduettes.. i found this site by jus lookn for information on thyroid surgery... yesterday i was told i have a thyroid nodule... Creeped out i am... The doctor sed i need surgery... i dont wanna let them cut my neck open.. im so scared.. i cant even relax.. i feel like theres somethin stuck n my throat n like i cant breathe... i jus want all this to be over with. im only 19... sooooooooooo scared.
Audrey My fine needle biopsy showed the same as yours. I have had my surgery already--on July 9th. Turns out it was benign. My Dr told me their was a 15 percent chance it was malignant. I'm sure it depends on your history and if there is any thyroid cancer in your family. It also depends on whether or not you have had other nodules removed.
Hi Suzie,
Thanks for responding, i'll be giving you updates everytime i see my doctor. I'll also share my story to everyone.
Hi Audrey - Hope things are moving along well for you. Watch for any additional posts from Alona - looks like she has a similar diagnosis as yours. I hope to learn more about it as well. Take care and thanks for the comments!
Hi Alona - sorry for late response - hope you're ready for your doctor meeting tomorrow! Only think I can think at this point to ask is 1) if surgery is suggested - will they remove full thyroid or only the side with nodule - difference can be whether or not you will need hormone replacement medication. My doctor was prepared to remove my full thyroid and I asked if we could try just the half with the growing nodule - he agreed and as a result I do NOT need any medication since the left half can do the job alone. Either way, I've been hearing/reading that even the meds are very manageable.
Good luck with your appointment - please check back with an update! :)
Hi guys, my friend directed me to this site after I told her I am scheduled for thyroid surgery monday July 20th, for a fast growing nodule, coughing and hoarseness all seemingly related to hypothyrodism I really enjoyed this sight, and now feel that this surgerys worst part is the before and after nerves, I hope to be back to work within a few days but realize from this sight that may be pushing it! Anyway thanks for the updates and pics, I have a greater ease of mind after reading your (Suzie) blog and all the other readers comments!
Hi Suzie,
Thanks for your encouragement. I'm glad theres a forum like this. Im still nervous but i feel relieved everytime i read articles on this site.
Hi guys... Reading your article makes me relax. By the way is there someone here whose biopsy result is similar to mine? There was a follicular neoplasm wrtten on my biopsy result...
Hi Suzie,
I have a 2.5-3cm x ? noduleon thyroid and fna came back abnormal with suspicion of follicular neoplasm which is not making it's own hormones so they of course have to take a look- I meet with the surgeon on Monday July 20th. Is there anything in hindsight you asked that someone who is not dealing with this well might forget to ask? I am not looking forward to this although I am humbled and grateful to God. Thank you
Hi, everyone, I was shown this sight by a friend, she found it when I told her I am set to have thyroid surgery on Monday July 20th. I will have my right side removed due to a fast growing nodule I honestly feel that this procedure is not such a big deal, although it is nice to read and see everybodys questions and concerns which has helped reassure me that this is a pretty simple procedure and that the fretting before and after the surgery is probably the worst part!
Hi Audrey! I hope you will be able to get more information from your doctor before your surgery - sounds like you will be more relaxed knowing some details. I'd suggest reading the comments here to make a list of questions - like about sutures or strips. Samantha just wrote about her stitches and sounds like it has turned out great. Good luck with everything - keep us posted and try to be calm!
Hi Suzie,
I had a total thyroidectomy on 1st July 2009. I was very nervous prior to the operation but have to say that it has been a relatively easy recovery and not as painful as I thought it would be. I had dissolving sutures and now 14 days post operation have a thin dark red scab over the incision. My recovery has been almost identical to yours and the only feel discomfort is when I turn my head quickly or too much to the side. There is still a tightness in the area of the incision but otherwise I feel great! I am still tired in the afternoons and take paracetamol only when needed (in the afternoons mainly or before I go to bed).
I had some swelling post-op but this subsided substantially within a week and I still have some slight "puffiness" right in the middle above the incision. The incision is still sensitive to touch so I avoid this if possible! My oroxine medication is now 100umg and my calcium levels are fine. Back to surgeon on 5th August and I am sure he will say that all is well. Oh and my nodule was benign. Thank you so much Suzie for the record or your story it was very helpful, especially the photos. Thanks again. For those who are facing surgery just take it easy and listen to your body, it always know best!
Hi, im planning to have my thyroid removed this coming sept. im not that ready yet. financially and emotionally. i amd just wondering if i will also just be having the surgical strips or doctor needs to stitch it. I haven't asked my doctor about it yet. for all i know is that i will be having a surgery this year, i didn't know that theres this kind of surgery with no stitches. hope thats the one that they will be doing to me. what do you think guys? im so nervous rgt now.
Thanks for a great post and the pictures...I am sitting by the phone waiting for results of my nodule biopsy and have avoided the internet up until now...your cheerful but realistic post helped me feel I can cope with whatever the results are. Thanks again. anita
Hi Suzie,
Thanks so much for your response. The surgeon's secretary isn't in over the weekend and there isn't a voicemail facility, so I am going to call them tomorrow morning and ask to be seen ASAP. They hadn't arranged a follow up appointment, aftercare was supposed to be through my doctor, the clueless one!
Must admit, I have really wound myself up about the whole thing tonight. Swelling is still the same and it still feels as if I'm being strangled. I've looked at just about every post op thyroidectomy picture on the internet, and none of them look like this 10 days after. I don't think it's anything serious, possibly full of fluid which hadn't dispersed (they didn't insert a drain) but I just want to know it's within the realms of normality, or for them to sort it out. Then I can stop worrying, it's been horrible!
Thanks again Suzie, I appreciate you taking the time to respond xx
Suzie, thank you for this wonderful web page and all the people that responded to it. It is very reassuring that everything will be alright. I will be having my total thyroid removal this Wednesday, July 15, 2009 and I feel much more comfortable seeing the pictures and reading the comments. Thank you again, as well as thank you to everyone that added to your page.
Hi Sarah - wow, I hate that you are having such stress after your surgery. As I recall from my surgery, the swelling was not as severe as you are describing. I did have a similar feeling about the hardness around the incision - that took a couple of months to go away, but I could tell it was getting smaller by the week. I do know I never felt anything like the tight scarf being around my neck. My (completely non-medical) opinion is that if you are uncomfortable and feel such stress, you should definitely ask to be seen by your surgeon (or the team or whatever). Even if all they say is that all is well, it will be worth the reassurance for you. Can you leave a message for them over the weekend so they will be expecting your call on Monday? I had a pre-arranged appointment with my surgeon for 14 days post-surgery - do you have one set up? If so, you'll have to decide if you can wait - if not...I would definitely make one.
Sarah please write back with the results - I will be thinking about you!
Hi everyone, I had a total thyroidectomy on 2nd July 2009. A few hours after the operation when I went to the toilet for the first time, I noticed that there was a fair bit of sweeling above the incision. I asked the doctor to take a look, and she said it was normal, what did I expect so soon after surgery?!
Fair enough, but 10 days on, the swelling is pretty much the same. I went to see my own doctor two days ago, and she said she didn't know whether that amount of swelling was normal or not, as she had onlly ever seen one post thyroidectomy, and that was 6 weeks post op. She advised me to call the surgical team and ask their advice; she didn't think it was infected. One of the surgical team called me back and left a message on voicemail saying that as long as I could breathe and swallow, it should be fine.
Well, I can breathe and swallow, but it feels VERY tight around my neck, like having a very tight scarf around my neck. If I feel stressed or worried, it seems to spasm and feels like someone is throttling me! My daughter thinks that the swelling has gone down a bit, I'm not so sure.
All I wanted was some reassurance, which was why I went to see my doctor, and she couldn't give it because she didn't know, being inexperienced. I guess I could hassle the surgical team next week and demand that someone sees me and says either "yes, this is normal, go home, stop worrying it will go down in a few weeks" or "oh dear, that's not right, we need to do something to sort it out" ... in the meantime, could anyone comment on their own post operative swelling? My incision is about 4cm long, there is no swelling below it, but it is swollen for the whole length above the incision, with the swelling extending about 3cm up the neck and sticking out by about 1.5cm. The swelling is harder closer to the incision site.
Thanks in advance for any responses, this is worrying me a fair bit!!
Hello My mom just had her thyroid removed. I was nervous but I am glad she made it out of surgery. Now I am just concerned about her recovery. The doctor is waiting to get the results to see if it was malignant or benign but I am still nervous because cancer runs in our family. I try to stay calm because I have faith that everything will work out for the best. Also in doing some research I found that even if it is malignant, that it is very treatable and that the survival rate is very high. That's me being optimistic :-)
Hello Suzie,
After reading all the messages, I feel more confident than before, I just hope that my story turns out to be a good story and that I can finally look at this as something positive instead of as punishment!
I am worry about many things like how I would feel after the surgery because I hear many people saying that after the surgery is very painfull and its very dificult even to drink anything.
I am trying to learn as much as I can about this and know how things might be for me so can handle things better.
Thank you for your response, It had helped me alot to hear that many people had this surgery and they are okay now.
Thank you again Suzie!
Hello Marcela,
I know your surgery was just yesterday, but hope you are okay. If you are able to get this message before the 8th, please let me know how did it feel after the surgery or if you were in alot of pain.
I was told by many people to try not to talk and I don't even know if that is possible for me. I talk too much!
Stay well and thank you for your message.
Erick
Hi Claudia, I am feeling really quite well apart from still feeling tired but this is definately improving.I'm not too sure if this has anything to do with my thyroid or just the stress of having an operation but after my post op appointment my surgeon said this was normal. After your surgery you will probably have to have a blood test to check your thyroid levels. My surgeon said that it has to be done about 6 wks after the op as it takes this long for the body to sort itself out. So I will be having my test in 3 weeks time. I'm not taking any medication at all and unless the tests show otherwise I dont think that I will need to. Even if we have to take medication I dont think its that bad at all as its only one tiny tablet per day. Hope this helps!! Feel free to ask any more questions if you think of them before surgery:)
Hi Beth:
I will have the same surgery you had, on Sept. 1 my rigth side thyroid is gonna be removed. I know everything's gonna be ok, but my biggest concern is about my thyriod funtion after the surgery. My doctor told me I wont have to take any medicine for my thyroid because one side is enough to have a perfect funtion of the hormones. Tell me how is your thyroid funtionig, are you taking any medicine for the thyriod or not.
Thanks for taking a minutes to read my comment. hope to hear from you soon. Glad to hear you are doing GREAT!!!!
Good Luck Marcela! I'll be thinking about you on July 4 and can't wait to hear how GREAT it went :)
My heart goes out to you marcela. I remember the night before my Total Thyroidectomy like it was yesterday. It was on May 27th 2009. Almost yesterday. Its normal to be scared. But you need to allow yourself peace about the need for the surgery. It is easier said than done- But it is a choice to ALLOW yourself to have peace.
If you are having this surgery done bc the Dr's/Surgeon said is needed, or you are having side effects- Trust in their knowledge, and look forward to feeling better.
Any type of surgery takes alot out of you, but if you listen to the dr's, take your meds pain and other wise- you will be fine.
The power of positve thinking and believeing is far more powerful than any pill the hospital can give you.
Please feel free to email me directly- if you want- You will be in my prayers, as I know where your head is at, and the feeling of fear that can take over you.
I wish you Peace and Healing!
Julie
julieloo2@yahoo.com
www.thyroidsurgery2009.blogspot.com
Hi Marcela, I Kno that I'm not Susie but I thought I would just let you know that I am 22 years old and had my right thyroid gland taken out 3 weeks ago and I am feeling great!Of course you are going to feel nervous and scared about it as I definately did! But honestly after experiencing it I know that I could definately go through it again if I had to. You will be sore after the operation but as long as you have plenty of rest and have someone to look after you you'll be fine. I used it as a time to watch lots of movies, have lots of visitors and catch up on sleep!
And by the way if your worried about the scar don't be, mine is so much better than I thought it would be and as Susie & others said on here it should get a lot flatter and lighter within a few months. Good luck with your surgery, you will be fine:) it will all be over before you know it and you will be suprised with how quickly you start to feel better:) all the best, Beth
Hi Marcela! I can understand that you're nervous, but my best tip is try to be calm! For me the biggest sources of pain after surgery were 1) swallowing and 2) moving my head, like when you pick it up from laying down. If you can be in a comfortable position, like in a recliner chair or propped up on pillows, and have someone helping you, by bringing you drinks and popsicles, you can manage that pretty well. The swallowing just takes a little while to get easier, maybe 2 days. So when you're not moving or swallowing, it shouldn't hurt much at all! I really think you'll be ok and will keep you in my prayers! Please write back and let me know how it goes! :)
Hey Erick,
I'm having my left Thyroid gland removed on July 4th, and I'm very nervous and scared too. I'll tell you have bad is it as soon as I can.
Hey suzie,
I'm having thryoid surgery this Saturday (in two days). I'm only fifteen years old so I'm very very very NERVOUS!
Your article really helped me, it calmed me down a little bit, but I'm still very nervous =(.
What tips can you gave me?.. and how muck does it hurt?.. I'm very scared, because I think I'll be in a lot of pain.
Please answer me as soon as possible. Thank You.
P.S. sorry about my english, I'm from Mexico, so I'm still learning =).
Hi Erick! No worries about the scar - if everything goes as well as it should, the scar should end up being barely noticeable. Read thru all these messages and look at my photos - the scar is very very thin and pale. Even right after bandages come off, not a huge deal. I, too, was worried about this, but not to worry!
Hello everyone, I am having my right thyroid gland taken out on July 8th because of a large tumor and I am I bit scared about the surgery and if I am going to have a huge scar. Can someone tell me how bad the scar will be after the surgery?
Had my surgery on the 23 of June and surgeon says everything went text-book. I had little pain and no draining tube. Incision still is tender to touch and oh, the 9 tablets of
TUMS I have to take daily for 30 days. My calcium level was always perfect however. I am doing well. Will go tomorrow on the 1st of July for pathology report. The doctor believes my goiters were benign. I will keep you posted and by the way, this web-site is a life saver.
Hi Beth! Glad to hear things are going so well following your surgery! Yes, the scar thickness WILL go away - I'm 3 months out and I dont feel anything underneath my scar. The thickness is just the internal healing process. Now all I can feel is the scar indentation itself, and that continues to get thinner. Energy-wise, resting is good and hopefully you'll notice improvements in that as well. If not, be sure to check back with your doc to make sure your thyroid levels are all good. :)
Hi everyone, I had my right thyroid gland taken out 16 days ago because of a large begign tumor and i'm now recovering pretty well. I was asked to leave my tape on after the surgery until my post op appointment, so I had this removed by the surgeon 3 days ago and was so suprised with how good the scar looked!! It does feel very thick though, i was wondering if this flattens at all? I actually left my job just before the surgery because it is my last yr studying teaching and i am beginning prac in a few wks so i didnt have to worry about having enough recovery time but i do still feel very tired and lethargic. My surgeon said that this is normal after going through the trauma of surgery, ive been resting heaps and thought id have more energy by now!!?? By the way I wish I had found everyones stories before my surgery to clam the nerves a bit! It really helps to hear other positive experiences :)
Hi Renae - yes, in a hospital. The IV was in the back of my hand, and the needle was just a tiny prick, and I learned they then take the needle OUT, so just the tube is in. Before any anesthesia, they put in saline (I think) and that kind of burned, more than I expected it to. Nurse said that was normal - just have someone talk to distract you and you won't notice it. I did wake up sore and they were good to give me medicine, then I could control the pain with the vicadin they gave me (I didn't need it for long, and many people have written here they used only advil type meds). It does hurt to swallow for the first couple of days - be prepared to crush up any medicine you do take. It was difficult to talk also at first. I realize I'm telling you some of this stuff hurts - please don't be scard by this! It truly is tolerable and doesn't last too long. If I had to do this again I would not be nervous at all. :)
Hi Suzie i was wondering maybe one more quick question was the i.v. bad? did it hurt alot? Did you wake up sore in recovery? Could you swallow soon after? Did you have your procedure done in a hospital?/?
Hey Renae - check below for comments from Julie and me in response to Anastasia for ideas of things you might need. My healing was pretty much what I thought it would be - I was surprised when i went back to work how much simple movements caused my neck to be sore - be sure to take all the relaxing recovery time you need!
thanks Suzie i went back to my dr. he said everything was ok i have swellen tissue
everything should be ok go back in a mo.
thanks
Hi Suzie once again thanks so very much, i was wondering what things would i need after surgery besides popsicles, smoothies, and soft foods lol were u nervous about the doctor and did u heal as fast as u thought u were? the scar was really un-noticeable 3 months post op hopefully mine does the same lol i'll keep you updated when i recieve further information>>>:)
Hi Renae! I'm glad the article has helped you! From a surgery recovery perspective, the timeframe for surgery-to-school sounds very good - you should have very good movement and little or no pain by then. I'm afraid I don't know much about how you might feel if you are on or need any thyroid replacement medication (energy-wise or whatever). You've been dealing with that for years so you might already know how that will go. Sounds like you've got a good doctor and a good plan - I wish you all the best - come back and let us know how it goes!
Hi Cindy - well, my first thought is definitely "try to remain calm!!" I should start with I don't know anything about the screws you've gotten, or what the plate might be - but it sounds pain and movement wise that you're right on track. I'm surprised you don't go to the dr for 5 weeks tho. As for the strips, I did the same thing with the trimming, and I let them get as wet as possible in the shower. Maybe in a couple of days you will be able to gently peel the rest off? (Don't force them tho) Then if what you actually see under there looks like a square thing you shouldn't have you can call your doc to get in sooner. Maybe someone else reading in will know more. Good luck, stay calm and please check back with the scoop!
I just had cervical screws put in the anterior side of my neck. Of course they go through the front for this. I am on day 9 since the surgery and the little strips have not come off yet. I've trimmed the edges as they've curled up but I still have probably half of it left. My worry is, it looks like I have a big play sticking out right there. As far as I know I didn't get any plate, just a couple of screws going up and down. What is the big thick square I feel and see??? I'm scared to death of what is wrong - or is anything wrong? I don't have a post-op appt for another 5 weeks and everything else is healing nicely. I move my head in all directions, the pain is diminishing, no sign of infection, just this square looking thing. Anybody have any words of "calm down Cindy, you'll be fine"?
Hi Suzie thanks so much for the article i really really really appreciated how fully detailed with updated photos an post op essential side effects you've shared!! i've actually had a thyroid problem for a little over 4-5 years now im 16 yrs. old and my doctor said the surgery would be a good idea since i found out about it(my thyroid problem)kinda young it has changed from hypo to hyper on several occasions over the years an i've always wanted it removed from day one back in seventh grade lol so my doctor is lookin to scheldule the surgery by the end of july and i return back to school august tenth...do u think that would b a good idea??? and once again thanks so very much!!!;)
Hi Arlenis! Hope everything goes well on Friday - I'll be thinking about ya! :)
Dear Suzie,
I'm having this surgery on Friday and I'm feeling nervous and anxious, reading your story calmed me a bit and I'm glad everything went well for you. Wish me luck and I'll report back once I'm back home. =)
Had partial on Friday, June 19. It's Monday and i feel pretty good. Nodule was not canerous. Pain was minimal. I only needed a couple of Tylonel in the evenings. My energy level is still pretty low, and bending over is unpleasant. I also have to eat slow and take small bites. I had planned on going back to work on Wednesday, but may wait until after my Dr. appointment on Thursday. I was wondering about the use of Mederma and will try it when dr. says it's okay. My concern with getting back in a normal routine is the cosmetic aspect-- i know it will get much better, but i'm Frankenstien right now! In Florida, turtle necks are not practical!
Don't feel bad. I have my thyroid removed on June 23, 2009 and I am a little worried. Doctor believes my goiters are benighn but you never know. My blood levels are great, but the goiters continue to get bigger. Good luck to us both!
I would say apple sauce in the little plastic containers was a life saver for me so that i could take crush up the pain pills and other medicine until i felt i could swallow. also those icee pops.. you can send those in a package.
cans of Chicken Noodle soup was great for the first forms of soild food... nutritious and easy to make.. a cute decorated waterbottle..maybe even one of those coffee that are plastic and you could put pictures in it of the two of you, or of inspiring qoutes. Mainly I would just say- to send your love and support. having a friend like you who cares enough to research your friends condition is such a blessing!! She is lucky to have a good friend like you!
Anastasia - hi! What a GREAT idea for your friend! Here are some random ideas: U-shaped travel pillow - I couldn't have slept without one the first couple of nights; V-neck shirts or tanks, because she won't want anything touching the incision area for awhile; if she's a ball hat wearing girl maybe one of those, because washing hair will be difficult at first; I watched a lot of movies so a giftcard for a local movie rental store; Mederma scar treatment with spf (I couldn't find the spf kind at my nearby stores, hope you can - if not, the regular has been great for me); since i'ts summer, either a small tube of zinc oxide high spf sunscreen - I like using the kind that goes on white so I can see if it wears off - OR the sunscreen that is in a tube like chapstick so it can just be smeared on; books or magazine;, coupon or giftcard for jello/pudding/popsicles; if she's a jewelry girl maybe a cute pair of earrings because she won't want to wear necklaces for awhile; a puzzle to work on; cd's for those times all she wants to do is lay there and listen :) That's all I can think of for now! Have fun with it and I hope all goes well with your friend's recovery.
suzi...i was very happy to finally see that someone is posting positive information online for others to view when it comes to having their thyroid removed..it really isnt that bad and if you keep a positive attitude and keep your doctors appointments you will feel better within a week..i had a complete thyroid removal on june 4th and was home the following day from the hospital ...i had to wait a week for the pathologist report since the growth was much larger than the sonogram showed but it turned out to be benign...i will start back with all of my normal activities as of this weekend..and i was able to return to work full time after one week....hope this helps anyone who reads it....
Hi Suzie! Im glad everything went well. One of my friends just had the same surgery yesterday and since I live so far away from her, I am not able to be there for her so I am making a care package to send her. I was hoping you might have some ideas on some things I could put in the package that you found helpful to have after your surgery.
Hi Suzie..thank you so much for your warm words. I am seeking treatment options in another state,so you might not hear back from me for about 1 month. I am going to go ahead with the rai and also seek counseling i feel i need now..well thanks again and look forward to be back and update all...yes if anyone has hade any experiences with rai i would love to hear them..until next time Everyone hang in there. :)
It went well.. more than well. I didnt know this going into the surgery- but they actually found cancer. Stage 1.. which im more than greatful they took the whole thyroid out now! I will do the Radioactive Iodine Treatment on Tuesday June 23rd if all my thyroid levels are low enough- and will do a total body scan on Friday June 26 to see if it spread, and to see the efficacy of the RAI treatment.
Please check out my blog on my recovery at thyroidsurgery2009.blogspot.com
I cant thank you all enough, Its important to get correct info, and to support each other thru this disease, treatment, surgery, and recovery and beyond! No Pharmacist can bottle a positive attitude- and that i feel is key to healing!!
Blessings and Health to you all.
Julie
Yasmine! Good to hear back from you! Glad your surgery went well - sorry to hear about the cancer but glad you decided to have it removed. I have heard about RAI but don't know anyone who has had it. From what I've read it seems to be mostly inconvenient but not painful or anything - and it seems pretty successful. Maybe someone reading will have info for you. Best of luck with it!
Hi David - I didn't experience any lump like you describe. I had a dr appt 2 weeks after surgery - do you have one coming up? If not, if it was me, I'd try to see someone soon, especially if it's painful or a totally new lump. Good luck -
hi i had my right thyroid removed june 5
doing fine but i have a lump like in my lower neck feels like gause or sponge left in there
did anyone else feel this way
thank you
Hey Suzie...Sorry for my hibernation..i tend to do that alot :)...well i am 2.5 weeks post op..i feel pretty good..Well when ni went to my follow up appt on june 08 the same day you posted your encouraging words(thank you) my docotr blurted out that he had found " a little papillary cancer on the right side(remember i was debating on leaving that side in!!I left the Dr's office in total shock I am doing much better know i am putting together my plan of attack :)They recomended the radio active iodine treatment(rai)..not sure if you have heard of this but yes i am researching and getting ready. Oh and dont 4get the cherry on top..on saturday bi had a high fever and i have a kidney infection(painful) but today i feel muuuchh better..well once i know what i am doing i will let you know..Thanks again for your continued support and i promise i will check back often....How are you feeling? Everyone please stay strong my neck is a little sore ..but no big deal... my scar looks great (been using mederma like suzie and swear by it.
Virginia I'm so glad everything has gone well for you! Wishing you continued good recovery!
Hi Debi - wishing you well on your surgery! Please post back after and let us know how you're doing! :)
Hang in there Rhonda! I'm happy that many who have added comments here have shared my "surgery and recovery going smoothly" experience. Hopefully this can help you be calm and strong for your surgery. I will be thinking about you - let us know how you are doing!
Hello Sommer - have you received a response about needing surgery yet? If you do need it, I hope all the positive comments you read here will help calm your nerves. For me, the pain was totally manageable, both with and without meds. Most of the pain comes from - duh - moving. So for you and your kids - can your mother stay with you for a couple of days? Or maybe she can keep your kids for a few days, at least the two youngest? I think the ideal healing process would be just you taking care of only you - ha! I know. But you will absolutely want to do some resting, and your little ones will require lots of activity and moving from you. Good good luck with this - and try not to worry about the scar too much. I'll send in a pic soon of mine after 3 1/2 months and I think it looks great. You could ask you doctor if any of his patients would be willing to show off their scars - he may even already have pictures, so you can see what YOUR DOCTOR's work looks like! Any way - best of luck and post back!
Hey Yasmine - been thinking about you - hope your surgery went well - drop us a note when you can to let us know how you are! :)
Hi Amy! I didn't have any symptoms before surgery, and I haven't noticed any after. My energy level has actually increased a little, but I think that's because I was diagnosed with anemia during my pre-surgery check up. I've been taking iron supplements since my surgery and anemia is gone. Good luck with your surgery - I hope you continue to be symptom-less!
Julie -how did your surgery and recovery go?
Suzie,
Thanks so much for the information. I am having a full thyroid removal on July 1. I was wondering if you've felt any decrease in energy or any weight gain. I'm one of those rare hyperthyroid patients that has experienced ZERO symptoms, and now I'm nervous I'll have HYPOthryoid symptoms. Thanks!
Thank you so much for sharing these information! I am have a TT on June 24, 2009 and am scared out of my mind! I've cried everyday since I found out about the surgery. I keep reading information on the web to educate myself and your story sure has eased my nerves. thanks!
I agree with everyone that has posted to this. I just found out I'm going to have to have a total thryroidectomy. I meet with my surgeon on Tuesday to find out the date and ask the questions that I have. This really helped me in some of the questions about pain and such. I'm glad everything worked out so well for you!
I also had this surgery on 5/27/09 - just the right side. Very little after surgery pain. I did not even have the prescription for pain medication filled. I've been off work this whole week though I think I could have gone back on Monday pretty easily as I had a hair appointment already scheduled and drove myself to that with no problems. But I think I'll take another week anyway just because I don't want to go back to work! I don't return to the doctor till tomorrow but I had several questions and this blog answered most of them. The surgical strips are my biggest discomfort and I'm glad to know they should be falling off soon. Thanks for the info and comments. Recovery wise it sounds like I'm right on track.
Suzie,
I am going to the doctor today to find out if I have to have my thyroid removed. I've been having problems with alot of discomfort from my goiter and my thyroid is quite swollen. I have to say I am pretty much mortified about getting this done. I am scared of the surgery itself but am not thrilled about the scar either. I'm only 29 and very self-conscious anyways. I'm also worried about recovery as I have a 7 year old, 5 year old and 2 year old at home. My husband works full-time and my mother is over an hour away. Any advice????
I had the left half of my thyroid removed May 21, 2009. Stayed overnight in hospital. I feel much better than I expected. I can do almost everything in the house except bend over. That lets me know that I an not as well as I thought. My neck has swollen some, but not too badly. I wish I had found this site before my surgery. Many questions would have been answered for me.
I m scheduled for Next May 27th, 2009 Total thryroidectomy. I told myself to not look anything up online- for fear it would make me more nervous than I already am- yet- Im so glad I did. I appreciate you reaching out to others that will travel a similar path in surgery and healing.
I will visit back too, after my surgery, and post on my facebook page julie sparks
Hi Suzie,
Reading you blog has made me feel a little better about this surgery and the recovery. I am scheduled for surgery May 27th. I have been diagnosed with Hurtle Cell Neo Plasm. I have been told from 3 different specialists that it is a very rare type of tumor. Therefor there is not much research on it. I was wondering if anyone else who has posted here was diagnosed with the same. If so, what was the outcome? Did you see a Otolaryngologist or a general Surgeon?
any input would be so helpful...
Thanks,
Patty 5-17-09
Thanks for the response..the more i think about it the more i lean toward having the whole thing removed. I will keep everyone posted thanks again :)
Hi Yasmine - good luck with your surgery! Of course you and your doctor will have to make your decision, but my own personal preference would be for one surgery. If your doctor is sure you'll need to have the right removed eventually, you might do well to just have one surgery. Either way, hope it all goes great!
I had the surgery last Monday, May 4, 2009. After one night in the hospital, Day 2 I felt pretty good. I took one week off and by Friday of that week was back to normal with more energy than I've had in a long time. I went to a spinning class on Day 10 with no fatigue whatsoever. I am feeling tons better than before the surgery. I had Graves Disease and papillary cancer and now have neither...yeah! Good luck!
Hi suzie ..your experience as well as everyone who is on here are making me feel a little more at ease. i am scheduled to have a total on may 28. I am a little nervous about having this i have 1 4.5 cm nodule on the left and two 1.5 cm on the right ..doc says the right will just continue to grow. cant make up my mind..dont want 2 surgeries. thanks for sharing :) :(
I had surgery on April 23rd I am having problems on the left sidid of my jawline all the way down to the collar bone, my voice get very hoarse and somtime I not able to talk at all. I am wonder since I talk on the phone for eight hours a day will tha become a problem. I am also having some aggressive issues.
Hi Barbara! Best of luck with your surgery on Saturday - please report back when you are able to. I do recommend taking at least one week off with an idea that 2 might be needed. I'm sure all will go well for you!
Suzie - I'm having a total thyroidectomy Saturday so I'm a little apprehensive. I have 9 nodules; two that have doubled in size since October (my first ultrasound). Thank you for posting this. I've been looking for post-surgery information and this helps. My initial plans are to stay home from work for a week but I guess I'll play it by ear. Take care, and thanks again.
HAD MY SURGERY A WEEK AGO...THE FIRST TWO DAYS NO PAIN AT ALL AND ON THE THIRD DAY PAIN LEVEL WAS AT A TEN...USED THE VICODIN AND GOT SICK WITH NAUSEA..TOO STRONG SO I CUT BACK ON IT...THE AREA OF INCISION IS NOT PAINFUL BUT THE AREA ABOVE AND MY JAW LINE IS PAINFUL. WAS ABLE TO EAT ON DAY 6 WITHOUT PAIN AND NOW ON DAY SEVEN SO FAR NO PAIN. MY AREA FOR REMOVAL WAS THE LOWER RIGHT AREA OF THE THYROID AND SO FAR EVERYTHING IS FINE WITH THE REPORT. AM AND HAE BEEN UP AND AROUND SINCE THE DAY AFTER SURGERY BUT FATIGUE AND WEAK STILL.
Hi Suzie... thank you so much for sharing your experience. My surgery is scheduled for thursday I have a complex cyst of 3.5 cm on the left lobe, my doctor wants to do a total thyroidectomy but I insisted on having only the left side removed until we know for sure that it IS cancer :( The surgery scares me of course but I'm actually way more nervous about the results. I'm just trying to stay calm and positive. Thanks again...
Thank you so much for writing about your experience. I have thyroid surgery scheduled for Wednesday. I'm really nervous and a little scared, ok alot scared. Reading this has helped. Again, thank you.
The remaining half of my thyroid IS enough for the hormones, so it is possible. My doctor wanted to wait 4 weeks from surgery before checking the bloodwork, because the residual hormones from the part they removed can linger that long. The only questions I had for my doctor was "is it healing properly?" and "should I be putting anything on it?". That's when he recommended the Mederma.
I had surgery last Thursday and walked to library downtown on Saturday. Went mushrooming on Sunday and on Monday was shopping. Finally rested on Tuesday. Lots of rest is good. Wonder if the other side of thyroid will be sufficient to supply needed hormones from now on. Anyone know? My nodule, more than 4 cm., was also benign, found out today. So I'm hopeful. Plan to go back to work next Monday. What should I ask my doctor on my appt. in a couple days?
Lia, I'm so glad to hear it all went well! Thanks for reporting back and I hope your recovery continues to go smoothly!
Hi Suzie, just wanted to let you know that i had my surgery and it all went really well. i am happy to report almost no pain, and my scar is looking like it'll be very thin, like yours.
I'm just glad it's over. i was incredibly nervous the day before!
and, again, i can't tell you how great it was to read your report on it. Thank you for doing that!
all my best, Lia
Reading all your blog has made me a little more calm about my surgery next month. I was very nervous about the scar.
Hi Suzie, thanks for responding! i was grateful to read your upbeat account of the surgery. i'm really nervous, but just trying not to think about it too much. they're removing the right half, since that's the overactive side. i'll def. let you know how it turns out!
Hi Lia - it's almost 6 weeks after surgery and I'm feeling great. my scar is about 2 inches long - the doc had said it might be 3-4, so I feel pretty good about 2! I have definitely watched it get thinner, turning into just a line (like a pen would draw) instead of a puffy, dimensional scar. I am surprised that it is still tender, but I can't say it "hurts". Twisting my head quickly (like to back up a car) causes a twinge, and rubbing it (to put on my Mederma scar gel) also feels sore - but again, not really pain. Interestingly, NO ONE who did not know about the surgery has noticed it until I pointed it out.
I wish you the best with your surgery - (is it a partial or total thyroidectomy?) please report back how you're doing! I will send warm recovery wishes from Cincinnati!
Dear Suzie, i am having this very surgery on thursday. i am wondering how you're feeling now. and about how long your scar is, and is it how long the doctor said it would be?
also, what part of the country are you in? i'm in new york.
sincerly, lia